am 23. Dezember 2005
Elisabeth Kübler-Ross's book, 'On Death and Dying', is one of the classic works in the field, still used to educate and inform medical, counseling, and pastoral professionals since its original publication in the 1960s. Kübler-Ross did extensive research in the field by actually talking to those in the process of dying, something that had hitherto been considered taboo and an unthinkable, uncaring thing to do. Kübler-Ross asked for volunteers, and never pressured people to do or say anything they didn't want to. One of her unexpected discoveries was that the medical professionals were more reluctant to participate than were the patients, who quite often felt gratitude and relief at being able to be heard.
Kübler-Ross also spoke to families, and followed people through their ailments, sometimes to recovery, but most often to their death. She let the people guide her in her research: 'We do not always state explicitly [to the patient] that the patient is actually terminally ill. We attempt to elicit the patients' needs first, try to become aware of their strengths and weaknesses, and look for overt or hidden communications to determine how much a patient wants to face reality at a given moment.'
This caring approach was often an aggravation for Kübler-Ross and her staff, because they would know what the patient had been told but was not yet ready to face. Kübler-Ross recounts stories of attempts to deal with death in different ways; denial, anger, bargaining, depression, acceptance -- in fact, the various stages of grief were first recognised in Kübler-Ross's research.
There are those who dislike the `stages' theory of grief, but it is important to know (as the quote above indicates) that these are not set-in-stone processes, but rather dialectical and perichoretic in nature, ebbing and flowing like the tide, so that where a person was `stage-wise' would vary from meeting to meeting.
Kübler-Ross explained her interest in this research by saying that `if a whole nation, a whole society suffers from such a fear and denial of death, it has to use defenses which can only be destructive.' Her work is primarily geared to health-care providers, and provides verbatim transcripts of conversations with a wide range of people in different classes, races, family situations, education levels, and ages. The reader can then get a sense of how to better communicate with someone in a terminal situation.
'Early in my work with dying patients I observed the desperate need of the hospital staff to deny the existence of terminally ill patients on their ward. In another hospital I once spent hours looking for a patient capable to be interviewed, only to be told that there was no one fatally ill and able to talk. On my walk through the ward I saw an old man reading a paper with the headline "Old Soldiers Never Die". He looked seriously ill and I asked him if it did not scare him to `read about that'. He looked at me with anger and disgust, telling me that I must be one of those physicians who can only care for a patient as long as he is well but when it comes to dying, then we all shy away from them. This was my man! I told him about my seminar on death and dying and my wish to interview someone in front the students in order to teach them not to shy away from these patients. He happily agreed to come, and gave us one of the most unforgettable interviews I have ever attended.'
She concludes with a chapter explaining the reactions of doctors, nurses, counsellors and chaplains, professionals who deal with the dying every day, on how the kinds of listening and care she outlines can change their work and lives as well. It is remarkable to see some of the transformations which take place among these people.
I have used the advice and insight given by this book in my own ministry, and heartily recommend it to everyone, regardless of medical or ministerial intent, for it can give guidance on how to deal with the deaths of friends or family members and, ultimately, our own death.
Death will never be a happy subject, but it needn't be a dark mystery devoid of meaning and guidance.
am 17. August 1999
A brilliant book by E. Rubler-Ross who has dedicated her life to researching the needs of terminally ill patients & their families. This is essential reading for everyone, whether you have had to face death (either your own or a loved one) or not. It is common for Westerners to deny death by not discussing it, or even thinking about it. This book illustrates the many problems that can arise from this attitude & the heartache it can cause the terminally ill & their families. Thanks to E. Kubler-Ross for an amazing lifetime achievement.