- Taschenbuch: 288 Seiten
- Verlag: TarcherPerigee; Auflage: Reprint (5. Januar 2010)
- Sprache: Englisch
- ISBN-10: 0399535608
- ISBN-13: 978-0399535604
- Vom Hersteller empfohlenes Alter: Ab 18 Jahren
- Größe und/oder Gewicht: 14 x 1,5 x 21 cm
- Durchschnittliche Kundenbewertung: 1 Kundenrezension
- Amazon Bestseller-Rang: Nr. 335.994 in Fremdsprachige Bücher (Siehe Top 100 in Fremdsprachige Bücher)
Disconnected Kids: The Groundbreaking Brain Balance Program for Children with Autism, ADHD, Dyslexia, and Other Neurological Disorders (Englisch) Taschenbuch – 5. Januar 2010
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"Disconnected Kids offers a visionary new approach for helping many children with brain-based problems. These valuable clinical insights add much to our tool kit for caring. "
—Daniel Goleman, Emotional Intelligence
"Dr. Melillo's thesis and proposed intervention give hope to all affected parties (children, parents and clinicians) that neurobehavioral disorders of childhood can be eradicated one day in the near future by relying primarily on behavioral and cognitive treatments."
"I found the book to be very interesting and informative, including case studies of children he claims have been cured of some of these disorders, as well as checklists of ways to identify whether or not your child may have a brain deficiency or delay and what side of the brain may be involved. It does seem to bring a ray of hope, as many of us have come to believe that there is no cure for disorders like autism."
"I HIGHLY recommend reading this book! It was very enlightening to me. I do believe that his philosophy on these disorders is accurate and his approach to helping them is valid."
Über den Autor und weitere Mitwirkende
Dr. Robert Melillo, the creator of Brain Balance Program™, is an internationally known chiropractic neurologist, professor, researcher, and expert in childhood neurological disorders. He has been in private practice since 1985 and opened his first Brain Balance Center™ on Long Island, New York, in 1998. There are now 66 centers across the country, with more opening ocerseas in the coming year. His study, “Autism Spectrum Disorder as a Functional Disconnection Syndrome – a Model for Rehabilitation” will be published in The International Journal of Neuroscience later this year.
Dr. Melillo is president of the Foundation for Cognitive Neuroscience and executive director of the F.R. Carrick Institute for Clinical Ergonomics, Rehabilitation and Applied Neurosciences, a non-profit university-based brain research center dedicated to researching methods and products to assist victims of brain injury, chronic pain, and other neurological and neuro-behavioral challenges. He lives in Rockville Centre, New York, with his wife and three children.
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Die Übungen, die beschrieben werden, sind recht komplex und sicher schwierig für Kinder mit motorischen Koordinationsproblemen.
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Just to let you know, my daughter was ONCE profoundly autistic. She was so severe that doctors told us to just give up on her and just let her live her life. Well that is quite hard to do when your child is so aggressive and struggles so much with everything and anything to just not give her a chance. If I had given up, I would not have found Brain Balance. I am forever grateful to Dr. Melillo, his staff, and this wonderful program.
It was so exciting to see her at her birthday party this past week and see her eat cake, bowling, and have just a blast with her friends. She went from being so far into her self and getting worse to an outgoing, curious, humerous, lover of life little girl. I am thrilled with her willingness to try with school and her eagerness to learn the world around her. It is wonderful for her to read me a book, draw me a drawing, help with dinner, participate in Karate, and have friends that do not question whether or not she ever had any issues. She finally has a life.
I know for a personal fact that these stories are not made up. The only reason that others may think this program is to easy or to good to be true, is because our society has taught us to think only one way. We have grown to believe that there is no hope or cure. I never knew this to be true for my daughter, or her two brothers who also completed the Brain Balance Program for ADD and severe allergies. This is a very powerful program that I urge every parent to look into for the future of their child.
I am very excited that this book is finally out. I have looked forward to it for quite some time, in the hopes that families can at least experience what we have gone through. Brain Balance has brought such peace to a household that was once under so much chaos. I had three children at one time dealing with a severity of issues. I cannot even go into detail or put into words how wonderful it is to finally wake up from this nightmare. This program is such a blessing!
Please who ever is reading this, hold on to hope and faith. And never listen to those that are skeptical. This program can turn your child and your families life around as it did ours. Hold on to Believing!!!
For background, we started to realize that T had an issue when he was 2 and still wasn't speaking. He was a late walker and never really crawled properly, but we didn't realize those were issues until after the fact. When we brought up the speaking issue to our GP, it was dismissed. He's a boy, he's learning 2 languages, etc. I feel like this was the first mistake. We let ourselves be reassured instead of getting on the waitlist for services. At 3 years old, our daycare worker, who was wonderful, told us that T had issues with speach, gross motor and socially connecting. He had no friends and he would just stop and stare at other kids, rather than playing with them. He did not play with toys appropriately, but he loved the blender and food processor - taking them apart and putting them back together. He would stay occupied with these things for 30 - 40 minutes, but couldn't sit at the table for more than 2 minutes. We were constantly chasing him around with food so that he'd eat. On the other hand, his eye contact was good, he was loving with lots of kisses and hugs and he didn't spin or flap his arms. We were concerned, but not overly concerned at this point. Our GP referred us to a pediatritian. The pediatritian appiontment was shocking. She reviewed T for an hour and then told us that at 3 1/2 years old, he was at a 2 year old level. She said she'd send us to a neurologist to check his brain and get blood work done to rule out genetic disorders they could test for, but she didn't have anything positive to say. She didn't explain the various services available, what an OT does vs. speach vs. gross motor vs. behavioral. We left her office lost. We were already on the speach and OT wait list (14 months and 10 months respectively in Canada). I felt the peadiatrician meeting was a call to action and hired a private speach therapist. She was amazing. She spend 90 minutes with us the first visit doing an evaluation. She was the first person to tell us that T had an attention issue. We had no idea his lack of attention wasn't normal. She taught me lots of things, but most importantly that no therapy would work unless I learned it and did it every day with him. I've applied this to the speach/OT/Gross motor people we've worked with since.
By the time T was 5, he had continued to progress, but continued to be about 2 years behind normal. He was almost on par with his younger brother. He got his first frient at 5 - a boy 2 years younger than him. Grade 1 was looming and I felt pressure to do more. He was falling into a 'grey' zone where he had most of his self-care skills, but was not normal, so funding was scarse. I went searching for new ideas and found Dr Robin Pauc and then Dr. Mellio. I liked the ideas in the book, but better yet, I liked that the program itself tested before and after and that it wasn't subjective. At this point, I felt that both my husband or I were having trouble telling where T was and what improvements he was making. I also liked that it dealt with diet and supplements as well as exercises. It felt holistic. We went to Chicago and got T tested. He was operating at a 4 y or below level. He was 5 1/2 at the time. They also told us he couldn't smell (didn't even know how), he would have trouble feeling pain or feeling anything to do with his body (something we had not noticed at all). I moved me and both my boys to Chicago for 3 months to do the program. It was a huge commitment as I had to get a leave from work as well as the expense. For 3 months we did everything the Dr told us. They tested his blood for nutriets and IgG allergies. They found a bacterial infection, low protiens, an allergy to eggs. We removed gluten and casein over the first 3 weeks. We removed eggs the 4th week. He attended class 3x a week for an hour. At week 4, I got homework to start with him and we introduced supplements. I'd already started cod liver oil and vitamin D in the spring. These had an impact - after 4 months of cod liver oil and 1 month of vitamin D, T started riding his bike - an immediate improvement in his balance/coordination. He's also had very dry skin on his hands and now that's gone away. Until then, he had been scared to ride it as he would fall off. Now he's ready for no training wheels and he's so happy. We started a good probiotic for his bacterial infection. After 3 months, his stomach has gone down by 2 inches and he's looking normal. He's started pooping normally; he was always constipated before. Week 4 was horrible with some of the worst behavioral issues we've ever had, but things got better after that. T started being able to deal with delayed gratification (e.g. eat your snack and then you can...), something he couldn't have done before. He also woke up one morning and said - I smell breakfast. You're cooking pancakes. Really cool. He drew his first picture of bear with eyes, ears, arms, legs and nose. At 10 weeks, he started to feel pain. He spent 3 days learning to watch his hands, toes and head as he'd never had to do that before. This was really surprising to me as I had no idea that he couldn't feel them very well. Overall, the diet/supplement recommendations of this program follow the DAN (Defeat Autism Now) recommendations, so we've really had the benefit of both the DAN recommendations and the exercises of Dr. Mellio.
In the end, for work reasons, we couldn't continue the program for another 3 months. The Dr would have like to have T there for 6 months of one on one and 3 months of one on two with 6 - 9 months of homework. I'm pretty sure that if we could have continued, I would have a 'normal' boy by next Christmas. Instead, we are continuing at home. We've maintained the diet and supplements. We're still active outside and doing the homework. We'll see if we can go back next summer to do antoher program. I have so much hope for my son and I feel like I have a path to follow. T is now in school and his teachers are very happy. They have only had on definat moment but it was handled easily. They want him to move to grade 1 with his peers in Jan. We are not done yet, but we're on a good path.
If I were doing it over again, I would start the GFCF diet and an omega 3 supplement and vitamin D first for at least 3 months, so I got the most out of the program. I would commit to doing the program wholeheartedly (with the caveat of you are your kids guardian, so look up everything anyone suggested first and convince yourself it's safe). If I couldn't get to the program, then I'd start simple things at home - be more active, some of the exercises in the book. Don't get overwhelmed, just be patient with you and your child and know that every bit helps. Good luck!
I also expected the author to give some context as to how his research fits into the greater body of knowledge. "Disconnectedness" is a popular area of research, and there are many great minds out there working on these disorders; however, he doesn't reference other research (except in a negative way.) He has no bibliography and references no other work for a layperson to look to in order to verify his methods. In the absence of context and cited research, this book simply reads like an infomercial.
As the author he assumes the point of view that the reader accepts his credentials as an expert. His "proofs" are a handful of cases that he sprinkles oddly throughout the book. In these cases, he simply states the difficulty that the child had, possibly mentions some general approach and then states that Brain Balance cured the child. There is no description of the specific methods used to overcome the disorder...simply that the child was cured. I'm not saying that some parents have not had good results. What I am saying is that just because it worked in that case, is it reproducible? If the author feels that it is, then where is the study to show that? What were the conditions of the study? Have other researchers attempted the same thing with similar results?
As a parent and a layperson, I'm not looking for a textbook. I simply want some context in the field of research and follow-up references included in the material; otherwise, there's no way to say whether this is a reputable source of information.
The first part of the book identifies reasons why kids have these neurological disorders and how they aren't completely different disorders, but are all part a disorder named Functional Disconnection Syndrome (FDS). The author in the first part of the book states, "We can now see that virtually all of the conditions that adversely affect behavior and learning are actually related to one problem-an imbalance of electrical activity between areas of the brain, especially the right and the left hemispheres of the brain." The whole book and premise of the program presented in the second part of the book centers around the notion of FDS. FDS occurs as a result of a decrease in electrical activity in areas of the left or the right hemisphere, a higher than normal level of activity of areas in the higher functioning hemisphere, or a combination of both. The doctor states, "This disconnect is played out through what you see as unusual or disturbing behavior, ranging from impulsive actions and emotional outbursts to an inability to focus and social isolation". A list of symptoms and corresponding explanations of what they are and how they are apparent in children is also provided. Examples given are poor body awareness, poor gross and fine motor skills, poor eye coordination, compromised immune system, and poor social skills. This part also presents statistics showing how these neurological disorders have increased drastically over the last twenty years and how the author feels these disorders are caused more due to environmental factors such as lack of exercise, poor nutrition, less parent involvement and too much television. The first part ends with a chapter explaining how the right and left brain works. It explains that the right brain holds the big picture view of the world and the right brain disorders are diagnosed as: ADD, ADHD, Asperger's syndrome, Autism, Tourette syndrome, OCD, oppositional defiant disorder, nonverbal learning disorder, pervasive development disorder, developmental coordination disorder, and conduct disorder. The left hemisphere is explained as being the detail oriented portion of the brain and the left brain disorders are diagnosed as: dyslexia, processing disorders, central auditory processing disorder, dyspraxia, dysgraphia, learning disability, language disorder, reading disorder, acalculia, and selective mutism. This section of the book challenges the current medical procedures when dealing with these cases and presents a new encompassing procedure that groups all these disorders as one and gives a one problem one solution scenario. In theory, this approach seems worth it and the stories provided give a sense of 100% success in curing these illnesses. The problem with this information is other that no factual or scientifically proven data is shown. The fact that the same person who invented the program writes it and his knowledge is the only given doesn't nullify the program, but it does raise validity questions and at times it seems like he is trying to sell his program more than provide information.
In the second part the doctor presents the program, which he claims will significantly improve the affected child's health. The program is divided into three pillars of brain development: sensory-motor exercises, neuroacademic exercises and bionutrional exercises. Before the exercises are given an assessment is provided for the parents to conduct so that they will know the severity of the child's FDS, which hemisphere is affected, and nutritionally what foods may be aggravating the condition. The program begins by providing a master checklist of 200 characteristics, 100 signify right brain deficit and 100 signify left brain deficit, that contains all the characteristics of a child with FDS. The list is provided as a foundation to help parents determine if their child has FDS and which side of the brain is most affected. The questions are divided into motor characteristics, sensory characteristics, emotional characteristics, behavorial characteristics, academic characteristics, common immune characteristics, and autonomic characteristics; each category is subdivided into right brain delay and left brain delay. The total number of checks gives an indication of the severity of the problem and the problem hemisphere. After the overall assessment is given, the sensory-motor assessment is presented and this assessment evaluates the child's sensory-motor functions such as posture and hand dominance. The results are categorized into three levels with level 3 being the highest functioning level and the ultimate goal. Following the assessment Melillo provides sensory-motor exercises where he claims success should be achieved in about three months, but it can take longer. The sensory-motor exercises are the core of the program, but the doctor also provides an academic assessment and academic exercises to help bridge the knowledge gap, good diet strategies that will offer adequate nutrition for development, and a home behavior plan to boost success. The book ends by giving a profile of a child with a right brain deficiency and one of a left brain deficiency. This section of the book is pretty straightforward and the exercises seem easy to do, but it is time a consuming program. It is expected that the exercises be performed at least 3-4 days a week for a couple of hours afterschool. A family who has time constraints will face difficulties following the program and obtaining success.
Overall the Brain Balance Program seems like a positive alternative for parents who have kids with neurological disorders and the current treatment isn't working, or parents want to investigate alternate routes. No medication is used in this program therefore; the risk of side effects isn't an issue. The main concern about this program is the lack of scientific research backing it up and the apparent nonexistent failure rate that is usually very hard to achieve. As a whole I recommend this book to others especially if you are a parent of a child suffering from one of these disorders and want to check out alternative methods. This offers a simple non- invasive and non-medicated approach that may prove worth it, but should be taken with a grain of salt.
Yes, the Brain Balance program is expensive. They do offer scholarships and they now offer an "at home" program with support. There are also several other programs that utilize the same basic principles in other formats such as the Dore Program, Learning Techniques and even Hallowell has a program in a box for $300 or something. It's all the same basic idea...that the brain needs new connections to be made and strengthened.
What I think Brain Balance does best, is they have a very methodical system of assessments, testing and follow up testing. You get a baseline, progress reports and lots of support with home exercises, diet and even parenting support if you need it. Their approach is all encompassing. The brain-body connection is really profound. I witnessed improved awareness, self control and emotional stability with the decline of primitive reflexes. The science is now here to confirm how and why these seemingly simple exercises and lifestyle changes work.
My ADD daughter is no longer needing any support with her school work. She is a totally changed student. In less than 6 months since we did the program. The program identified her as left brain weak, which she was. She is an artist. Her right brain is incredibly powerful and lovely, but the left brain is what helps us organize and prioritize. She has been able to improve her grades and keep from getting overwhelmed with homework.
My ADHD son had to leave school because his symptoms were so overwhelming. He had all of the primitive reflexes firing and that really interfered with his ability to relax and learn in any setting but the most familiar and easy. He is now back in school and THRIVING! He is in the top group of readers and excelling in math, but most exciting for us is to see him feeling confident and in control of his body so he can make friends and feel good about himself. Kids with impulse control problems know that something is wrong and it really stresses them out. To understand that these impulses are the result of weak wiring that CAN be strengthened, is so cool!! He still has some primitive reflexes firing but they are almost gone. We feel confident that in time he will no longer struggle with these and he will have the control he desires and deserves.
Critics of this book or the research and therapies behind it have obviously no direct experience with it. Reading a book does not make one an expert. Just a critic...or perhaps just a troll.
There is a reason this area of research is exploding...it's the real deal. Real results for real kids.
The reason I am giving 4 stars instead of 5 is because I do think that Dr. Melilo needs to annotate his references and offer this book on it's own merits for the perspective and wisdom it offers those looking for an alternative explanation to their child's struggles. Not everyone can do their program, so they should really leave that as a supplemental piece at the end. The reality is that the program is necessary for the daily and weekly repetition but some families may actually give it a go and they deserve to know how. We are facing a massive cultural epidemic of kids with neurological weaknesses. We can all debate the reasons or specific causes, or wait for double blind studies funded by drug companies, but the fact remains our kids need help. The tools and exercises and tests that Brain Balance uses can help the majority...In an ideal world, these exercises and assessments would be available for every child.