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Dieses Buch gibt es in einer neuen Auflage:
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Produktbeschreibungen
Pressestimmen
From the reviews of the third edition: "The third edition is a welcome update which includes recent developments in the treatment of PWS … . The layout and illustrations are excellent. … will provide a wealth of information for the geneticist and it will serve as an excellent reference for any healthcare professional, family member or teacher." (Ruth Newbury-Ecob, Human Genetics, Vol. 124, October, 2008) "This is an excellent … book that cover every aspect and organ system involved in Prader Willi syndrome. … This is an excellent resource for anyone who wants to know more about this syndrome. The prospective audience includes parents, practitioners, and physicians … . This is an essential reference for anyone taking care of a person with Prader-Willi syndrome, whether physician, practitioner, teacher, or parent. It gives excellent and detailed information describing the disease and the problems associated with it." (Pinar Bulut, Doody’s Review Service, March, 2009)
Kurzbeschreibung
Endorsed by The Prader-Willi Syndrome Association, this manual brings together the considerable expertise of various professionals in the diagnosis and management of PWS. The book presents the historical, medical, and genetic background as an orientation aid for the reader before going on to explore the clinical, social, familial, and community issues and so pinpoint management strategies. Rather than becoming weighed down in research and diagnosis, the editors place the emphasis on pragmatic guidelines, thus clearly tailoring the text to the needs of health and educational specialists in academic, clinical, and community settings.
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Die hilfreichsten Kundenrezensionen auf Amazon.com (beta)
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2 Rezensionen
4 von 4 Kunden fanden die folgende Rezension hilfreich
Most comprehesive and complete resource book available on PW
27. September 1997
Format:Gebundene Ausgabe
It addresses areas specific to respective disciplines/professionals/areas of concern where parents or professionals can review without having to read the entire text yet allows them to get a good handle on the spectrum of the disabilitiy if they choose to.
3 von 3 Kunden fanden die folgende Rezension hilfreich
not worth it
7. Dezember 2000
Format:Gebundene Ausgabe
I have this edition and the one prior to this. Neither one is that useful. When I bought the 1st edition I thought it wasn't very helpful just because it was somewhat out of date, so went ahead and got this newer version hoping it would be more insightful. However, I am just as disappointed with this one as I was the first. I have a child who has this syndrome and had thought it would be a useful book to have on hand when my child has a new teacher, or a new baby sitter, or anyone else who is new in his life, but it really doesn't help much. It may in fact portray people with prader willi syndrome in a manner that is too negative, and provides little in the way of meaningful information re: helping or supporting the child or adult with prader willi syndrome. I am sorry I spent the money on it.
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