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Inner Strength: One Family's Experience With Cystic Fibrosis [Englisch] [Taschenbuch]

Cloyce Jones


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Synopsis

One never knows what life will deal to them. Throughout our lives, my family and I have had to deal with uncertainty. Starting with the premature birth of our first born son. The uncertainty of whether he would be strong enough to survive. To be told only three months later that he had genetic inherited disease called Cystic Fibrosis as well as double pneumonia. Leaving us, his parents, with the question, "How much time do we have with our son?" It was through my son's life that I found I had an inner strength within myself I never realized I'd had. This inner strength is what carried my family and I through after the birth of our daughter. To be told she did not have Cystic Fibrosis at birth to learn eighteen months later that she did. We thought we had control of the CF until CF began showing us it was in control. We fought CF with IV antibiotics, hospitalizations, home CPT treatments, oral and aerosol antibiotics, night tube feedings and home oxygen. When it looked like CF was going to win, we took the last option given to us to fight the CF, a double lung transplant.

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Amazon.com: 5.0 von 5 Sternen  3 Rezensionen
1 von 1 Kunden fanden die folgende Rezension hilfreich
5.0 von 5 Sternen A Must Read 14. Mai 2013
Von Vicky Rigali - Veröffentlicht auf Amazon.com
Look, I'm not selling this book, but you'll be selling yourself short if you're not reading it. The trials of death do not compare to the trials of living that are contained within these pages. Most of us, through our journey run into some snags. Getting fired, needing cash fast to fix a car to get to work and so on. We are "regular", "everyday" people living and getting snagged here and there. But what if your snag was living to die and choosing to be happy with what you were dealt anyway? This book does not preach the word of God. You will not find the meaning of life and you wont be able to change the actions of others. But you will see how one 17 year old mother learned to live over and over again. The author will take you on her journey. Hold your hand and let you cry with her. You will see how meaningful life is, even a short one. You will see how families put differences aside and come together. I can promise you'll cry, laugh and cheer her on as you read. There are more people that live on in these pages that the author will introduce you to. They will carry your heart away. Perhaps, you will carry them in your heart forever. I know I will. Learning to live over and over can only come from one place. Inner Strength.
1 von 1 Kunden fanden die folgende Rezension hilfreich
5.0 von 5 Sternen Excellent book giving a family perspective on coping with CF 20. Mai 2008
Von Naomi Cooper - Veröffentlicht auf Amazon.com
Cloyce Jones is clearly a remarkable woman. She has a strength that most of us can only dream of. This book portrays her family's lives as they cope with death, illness and then the happiness that the birth of healthy child and eventually a successful lung tranplant for Tara bring. With CF it is often one challenge after another but this family found unending courage to battle on. I was saddened by the extra stress caused to a sick child by insurance rules that meant they had to travel hundreds of miles to retain their coverage. It was however warming to read of the joy that the 'Wish Upon a Star Foundation' was able to bring.
1 von 1 Kunden fanden die folgende Rezension hilfreich
5.0 von 5 Sternen Bob Derr, author of "Burke's Tour" 17. März 2007
Von Bob Derr - Veröffentlicht auf Amazon.com
I appreciate the willingness of the author to share this remarkable story -- it creates additional awareness of the disease and generates funds to help researchers find beneficial treatments and a cure for this disease. Our son, Burke (who died due to CF in 1997), would very much have appreciated the family emphasis here.
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