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As a followup to his previous best-selling book, "Issues and Management of Joint Hypermobility: A Guide for the Ehlers-Danlos Syndrome Hypermobility Type and the Hypermobility Syndrome," Dr. Tinkle has created this handbook with several contributors to expand insights into the understanding and management of Ehlers-Danlos Syndrome Hypermobility Type and the Hypermobility Syndrome. Dr. Tinkle has received many accolades for his ability to take a complex condition and make it understandable in everyday language: "...provides a wealth of information about the natural history, and physical and medical management... It should be of great value to patients." - The American Journal of Medical Genetics Reader comments... "...a useful tool in helping me obtain the type of care I need to manage my disorder..." "This book is simple but not oversimplified. It is an excellent basic resource, giving a clear, concise, and useful overview for those (like myself) who live with hypermobility." "Super book for EDS! Finally a book that everyone can understand." "...thoroughly explores the problems associated with EDS-HM. It is a relief to realize that it is not just me..." "...a tremendous service for the health care community and the families and friends of those diagnosed or not yet formally diagnosed folks with EDS-HM... joy and clarity in reading the very 'easy to read' text chapters detailing out the impact of EDS-HM..." In addition to the weatlth of positive reviews, Dr. Tinkle's previous book on the same subject was a best seller in several categories: • Genetics • Medical Genetics • Orthopedics • Family and General Practice Brad T. Tinkle, M.D., Ph.D., is a clinical and clinical molecular geneticist at Cincinnati Children's Hospital Medical Center (CCHMC). He specializes in caring for individuals with heritable connective tissue disorders such as Ehlers-Danlos syndromes, Marfan syndrome, osteogenesis imperfecta, and achondroplasia among the many.
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Die hilfreichsten Kundenrezensionen
Ich kann das Buch nur äußerst empfehlen. Da man in Deutschland HMS/EDS Hypermob. bezüglich sowieso nur sehr rar mit Informationen versorgt wird, ist das Buch - gerade für erst Diagnostzierte - eine absolute Hilfe. ich habe mich in vielerlei Hinsicht erstens selbst wieder erkannt und zweitens bekommt man - gerade für das alltägliche Leben - viele Tips und neue Sichtweisen dargelegt... Absolut empfehlenswert.
Die hilfreichsten Kundenrezensionen auf Amazon.com (beta)
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14 Rezensionen
23 von 23 Kunden fanden die folgende Rezension hilfreich
The definitive book on Ehlers Danlos
24. Juli 2010
Von Amazon bestätigter Kauf
Dr Tinkle is a rare gem in the CTD world. Those of us with a Connective Tissue Disorder know how difficult it is to find a physician who in truly informed and engaged in up to date, appropriate treatment for these conditions. Dr Tinkle is amazingly available to his patients and truly cares about each individual he sees.
In this book, basically a revised & expanded version of his first book, Dr Tinkle explains the head to toe issues experienced by an Ehlers Danlos patient. This condition, so unknown to most, is debilitating, excrutiatingly painful, and very difficult to treat. Dr Tinkle makes the complexities of EDS much more understandable for those of us without a medical degree.
This book in an EXCELLENT resource for the newly diagnosed, or veteran EDSer who just wants to learn more. However, its most valuable use by far is as a learning tool for the Family Doctor who finds themselves treating an EDS patient. So few General Practitioners know anything about EDS beyond "Hypermobile, with stretchy skin" that EDS patients find themselves frustrated and unable to get proper pain management and care. I highly recommend that all EDS patients carry a copy of this to their GP and urge them to read it.
This book is amazing, thank you Dr Tinkle!
In this book, basically a revised & expanded version of his first book, Dr Tinkle explains the head to toe issues experienced by an Ehlers Danlos patient. This condition, so unknown to most, is debilitating, excrutiatingly painful, and very difficult to treat. Dr Tinkle makes the complexities of EDS much more understandable for those of us without a medical degree.
This book in an EXCELLENT resource for the newly diagnosed, or veteran EDSer who just wants to learn more. However, its most valuable use by far is as a learning tool for the Family Doctor who finds themselves treating an EDS patient. So few General Practitioners know anything about EDS beyond "Hypermobile, with stretchy skin" that EDS patients find themselves frustrated and unable to get proper pain management and care. I highly recommend that all EDS patients carry a copy of this to their GP and urge them to read it.
This book is amazing, thank you Dr Tinkle!
14 von 14 Kunden fanden die folgende Rezension hilfreich
Beyond Helpful!
24. Juli 2010
As a teenager recently diagnosed with Joint Hypermobility Syndrome, I have found Dr. Tinkle's books very helpful and understandable. This book in particular has proven to be a vital guide for everyday life with JHS. Instead of running in to my primary doctor right away, I can now look in the handbook and check if my symptoms are related to JHS. When I actually went in to be seen by my doctor this week with severe rib pain and shortness of breath, we were able to figure out what was wrong quickly because I brought the book along. The independence and assurance that having this book can bring to JHS patients on a daily basis is absolutely priceless, along with the convenient clarity of having explanations to everyday problems at their fingertips.
14 von 14 Kunden fanden die folgende Rezension hilfreich
Another great book by Dr. Brad Tinkle -- if you have EDS this is a must have.
20. Juli 2010
I have Classical EDS, and my son just bought me this book at the Ehlers-Danlos National Foundation conference in Balitmore, MD. I am enjoying the book. It goes beyond the scope of Dr. Brad Tinkle's previous book, by adding more information on coping strategies and treatment options.
There is no cure for EDS, but Dr. Brad makes it possible to learn to live with the symptoms, and helps to explain problems in a common sense easy to understand way. It is a great resource to bring to your doctor with the specific problems and treatments highlighted... just don't expect your doctor to have time to read the whole book... that is our job. Then we need to pass on the parts that relate to our current complaints.
There is no cure for EDS, but Dr. Brad makes it possible to learn to live with the symptoms, and helps to explain problems in a common sense easy to understand way. It is a great resource to bring to your doctor with the specific problems and treatments highlighted... just don't expect your doctor to have time to read the whole book... that is our job. Then we need to pass on the parts that relate to our current complaints.
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