Jayne Dixon Weber has been there.....she KNOWS what it's like to raise a child with fragile x syndrome. I met her on a trip to Denver with my son, also affected by FXS, and was impressed by her. All of that comes through in the firm grasp of the facts in her book. It's hard to describe this life to someone who hasn't been there, and Jayne does a remarkable job. I find her work to be professional and compassionate. I think this book would be a wonderful addition to a parent's library as well as that of educator, social worker, doctor, etc. It's a VALUABLE personable easy to read book, from a true veteran.