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Amyotrophic Lateral Sclerosis: A Guide for Patients and Families
 
 
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Amyotrophic Lateral Sclerosis: A Guide for Patients and Families [Englisch] [Taschenbuch]

Hiroshi Mitsumoto , Theodore L. Munsat


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Taschenbuch EUR 32,99  
Taschenbuch, Mai 2001 --  

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Produktbeschreibungen

Pressestimmen

"...well written and avoids jargon and highly technical language. It would serve as a useful introduction to clinicians who are dealing with ALS for the first time as well as a guide to patients and families." -- Physical Therapy, Elizabeth H. Littell, PT, PhD, January 2002

Kurzbeschreibung

Since publication of the first edition of this book, the understanding and treatment of ALS have changed dramatically. The many puzzles of this disease are being steadily solved. One cause of familial ALS has been identified, and the mechanisms of motor neuron cell death are much better understood. The FDA has approved riluzole, the first drug available for the treatment of ALS. Additional drugs are being tested and others are on the horizon. This comprehensive guide covers every aspect of the management of ALS. Beginning with discussions of clinical features of the disease, diagnosis, and an overview of symptom management. Major sections deal with medical and rehabilitative management, living with ALS, managing advanced disease, end-of-life issues, and resources that can provide support and assistance. Regardless of their views about long-range events, everyone dealing with the reality of ALS wants to know what to do now. Issues that they have or will need to deal with include: * whether to participate in therapeutic trials * the role of rehabilitation treatments * the use of riluzole (Rilutek), as well as new experimental preparations and drugs that have been approved for some other disease and are being used in ALS

In diesem Buch (Mehr dazu)
Einleitungssatz
With those words, Lou Gehrig announced his retirement from the New York Yankees on July 4, 1939, at the age of 36, ending one of the most remarkable careers in the game of baseball. Lesen Sie die erste Seite
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31 von 32 Kunden fanden die folgende Rezension hilfreich
Must read for newly diagnosed and families. 17. Mai 2003
Von S. Hansen - Veröffentlicht auf Amazon.com
Format:Taschenbuch
My mother was diagnosed with ALS in January 2001. Unfortunately, it took me 4 months as "Buyer Waiting" to obtain a copy of this book. By the time I received the book, my family and I already felt besieged by the challenges of rapidly advancing bulbar ALS. While I cannot speak for what this book might mean for the ALS patient, I can attest for what it has meant to me as caretaker. As such, I found my time and attention limited to each immediate crisis at hand. Fortunately, the book is arranged in such a way that you can skip around--reading whichever chapter or chapter portion pertains to your current dilemma. Sadly, I lost my Mom on Easter Sunday 2003. Probably, I only read 50 percent of this book before her passing--but that 50% did help me navigate the turbulent challenges of this disease and connect emotionally with my mother on a level that otherwise might not have been possible once she lost her ability to communicate. While this book is not an end-all resource within itself, it is a good place to start for the newly initiated.
11 von 11 Kunden fanden die folgende Rezension hilfreich
Excellent Resource 2. Januar 2006
Von Aman Bawa - Veröffentlicht auf Amazon.com
Format:Taschenbuch
I used this book religiously before my dad passed away from complications due to ALS last July. The book was very helpful to understand what was happening and what was coming. As depressing as it all is, it was better to understand the situation so I could do all I could to help my loved one. I was just looking at my copy the other day and the amount of highlighting in it and stickies hanging out of it reminded me of how used the book was.
8 von 11 Kunden fanden die folgende Rezension hilfreich
It's a 5 26. Januar 2004
Von "als_daddys_girl" - Veröffentlicht auf Amazon.com
Format:Taschenbuch
This book has helped our family tremendously with understanding what is occuring and how to stay ahead of the game dealing with ALS.

Ideas shared in the book are practical and helpful.

A good read for families dealing with ALS...especially care givers.


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